Day 42, M.I.A
I really must apologize for those of you who follow my blog, and expect a semi regular posting of updates. I honestly do get an overwhelming feeling of responsibility towards my blog, to the people who...
View ArticleCan·cer & Quality of Life
can·cer ˈkansər/ – disease; causing the body and mind to adapt, overcome, and embrace change. _________________________________________________________________ Quality of life: What do these three...
View ArticleI really need your help…Rare Disease Day
I’m dying but you already knew that – I just had to grab your attention The number one complaint you will hear from patients who suffered from being misdiagnosed or being undiagnosed is that nobody...
View ArticleReminding You…
How To Accept Declining Health When Chronically Ill – The Mighty Click Link Above For Article I often say that I don’t feel I’m fighting cancer; I live with cancer. What I fight for is the ability to...
View Article4th..5th time? I’ve lost count! IS a charm 💛✨
There are two things this disease has made me become an expert with: learning how to be okay with never leaving your little comfy space (or rather being confined to it). or constantly leaving that...
View ArticleI said I would never do that again 😭
But I learned something new again yesterday these bodies we think are ours? They’re not. We think they own them, we signed them over the moment we agreed to save our selves from the disease that’s...
View ArticleCreate your own Fabulous
Instead of running around for last minute gifts, decorating the tree, attending fabulous parties… The tradition we have manufactured the last three years is driving through snow storms hours away,...
View ArticleA zebra can be a unicorn
Pheo VS Fabulous 🚨 Coming to you live from the comforts of her 15×25 hospital suite 🏥 It’s incredible when the mental fog begins to clear just a touch and you’re able to begin to make the smallest of...
View ArticleZebra or Unicorn 🦄
If you have been in the “rare disease” world with us, you may wonder what the reference is to the zebra. When you hear hoofbeats, we are trained to think horses, not zebras … 🦓 This means that in a...
View ArticleBeating the odds
Five years ago, October 10th, I was told I had 1-5 years to live. I remember sitting there, so full of hate and anger. Thinking to myself, “if they had just listened to me, I wouldn’t be here” It took...
View ArticleClik here to view.
I have news …
Five years ago I was told I had 1-5 years to live. I sat in a white office with the same diabetes posters and bland medical facts I had looked at several times, and contemplated how angry I was. Angry...
View ArticleClik here to view.
10 things I’ve learned about fading relationships
Support comes in all forms when you receive a diagnosis, but as you become sicker and the “old you” starts fading away, so do your relationships. So many people want to be there for you when you first...
View ArticleClik here to view.
The Mighty Article
Yesterday I shared a very personal blog that I felt could relate to a lot of people going through similar times. Not even necessarily sick people, just people who have had fading relationships for...
View ArticleClik here to view.
Taking back my fab!
I’m no stranger to treatments and procedures, that’s the understatement of the century! However, getting something done because I WANT IT done, that’s a new concept as of late. When you’re sick, your...
View ArticleClik here to view.
This is your wake up call…
Five years ago it took getting diagnosed with cancer to make me wake up and see things for what they really were. The uncertainty you’re feeling right now? I felt that everyday. I still feel it, but...
View ArticleClik here to view.
I am Rare: 2021
If you had asked me six years ago what I was going to write in 2021 on rare disease day, I’d have told you I wouldn’t be here to share. I’d have told you what they told me, I maybe have a year left....
View ArticleClik here to view.
Reclaiming my power
I’m feeling very inspired lately, my urge to make a difference is strong. I sometimes get an overwhelming feeling of responsibility to prevent what happened to me, from happening to someone else. I...
View ArticleClik here to view.
“It’s not me…!” It’s my cancer!
“Harmonious self regulation is the body’s natural state, stress pulls you into another state, of heightened biological responses that triggers a flow of hormones, increased heart rate, stimulate the...
View ArticleCaregiver Chats: our story
www.instagram.com/tv/CTV0qRilPhD/ If you’d like to watch the replay of our LIVE chat, I interviewed my husband for the first time ever about our journey. He shares some incredible insight about how you...
View ArticleClik here to view.
How to conquer ‘Scanxiety’
Friday, September 10th Another day, another hospital, another scan. It Will Be Okay I can call myself an expert by now, I would estimate in my short time on this earth… I’ve had at least 70 scans....
View Article