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Ways to support your body through recovery
As many of you know, I live with adrenal insufficiency or Addison’s disease. It’s a difficult and delicate balance to make sure your body is getting enough cortisone replacement. In the event of...
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Radioactive Iodine ☢️
As I’m being wheeled in, I see the door and my stomach flips. I’m in the same room as MIBG 8 years ago… Catch up here on my experience so far with metastatic thyroid cancer and how it led me to doing...
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Inclusive Self Care
If you’ve ever had your battery run so low that seemingly small things like brushing your teeth is WORK, this article is for you. Self care is a wonderful replenishment of the mind, body, and spirit....
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Life in an unpredictable body
Anyone with a chronic illness knows a certain unpredictability. Whether they will have a good day or a bad day is unknown. But what if you lived in a body where the suddenness of the symptoms ruled...
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Unanswered Questions and a Mammogram?
Last oncology visit of the year I count appointments, small wins, month to month, day by day, because there’s no line we cross or distinguishing number that says we’re ‘done’. This was originally our...
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Health Update: navigating multiple conditions
I feel like I have so much to discuss since yesterday’s appointment, so here we go. NET CANCER DAY has really got me thinking a lot about how much responsibility falls on us as the patient. I’ve...
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Trapped in fight or flight
When we are in a chronic state of stress, it causes a physiological and psychological response called survival mode. This means the MIND AND BODY are focused on one thing and one thing only: danger...
View ArticleA lesson in life and death
“Being given this gift is a rare insight not many get to have, until it’s too late to apply it. I have the pleasure of giving a glimpse to all of you now” pheo vs fabulous Being palliatively treated...
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10 ways to calm your stress response
I’ve been living with a body that’s stuck in fight or flight since my teens. Of course for the longest time I didn’t know how to control or manage it. Then once I knew what I was dealing with, I was...
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Gallium 68: prep & overview
Congratulations! You’ve are having the ‘gold standard’ imaging with relation to pheochromocytomas and paragangliomas. The Gallium 68, I have had many of these scans, all the way from clinical trial...
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“Listen to your body”…?
Hello? Body? I’m listening! you did WHAAAAT?! I’m sure you’ve heard this phrase, probably hundreds of times. Although it is great advice – what does it actually mean?! There’s a lot of different ways...
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Medical Gaslighting
‘Medical Gaslighting’ You may have heard this term before, maybe even more so recently. Maybe it’s happened to you, it’s not something new, but rather something that’s being acknowledged and talked...
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How to conquer ‘Scanxiety’
Friday, September 10th Another day, another hospital, another scan. It Will Be Okay I can call myself an expert by now, I would estimate in my short time on this earth… I’ve had at least 70 scans....
View ArticleCaregiver Chats: our story
www.instagram.com/tv/CTV0qRilPhD/ If you’d like to watch the replay of our LIVE chat, I interviewed my husband for the first time ever about our journey. He shares some incredible insight about how you...
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“It’s not me…!” It’s my cancer!
“Harmonious self regulation is the body’s natural state, stress pulls you into another state, of heightened biological responses that triggers a flow of hormones, increased heart rate, stimulate the...
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Reclaiming my power
I’m feeling very inspired lately, my urge to make a difference is strong. I sometimes get an overwhelming feeling of responsibility to prevent what happened to me, from happening to someone else. I...
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I am Rare: 2021
If you had asked me six years ago what I was going to write in 2021 on rare disease day, I’d have told you I wouldn’t be here to share. I’d have told you what they told me, I maybe have a year left....
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This is your wake up call…
Five years ago it took getting diagnosed with cancer to make me wake up and see things for what they really were. The uncertainty you’re feeling right now? I felt that everyday. I still feel it, but...
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Taking back my fab!
I’m no stranger to treatments and procedures, that’s the understatement of the century! However, getting something done because I WANT IT done, that’s a new concept as of late. When you’re sick, your...
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